Engage with patients
Key insights from scientific literature
Explore the compelling evidence below that underscores why patient perspectives are crucial at every step of the journey. This curated selection of publications highlights the significance of patient engagement in health research and drug development, with each entry featuring a key quote capturing the essence of its findings, alongside a direct link to the full article for further exploration.
Want to use your expertise to make a difference?
Need patient experts to enhance your research?
Engage with patients
Key insights from scientific literature
Explore the compelling evidence below that underscores why patient perspectives are crucial at every step of the journey. This curated selection of publications highlights the significance of patient engagement in health research and drug development, with each entry featuring a key quote capturing the essence of its findings, alongside a direct link to the full article for further exploration.
Ways of contribution
Patient Involvement Activities
- Setting Research Priorities Define research priorities to ensure that development of novel therapies or interventions is focused on areas of patient care that require improvement.
- Gap analysis An evaluation and assessment of the current status of therapies/intervention developments for the purpose of identifying the differences between the current state and where patient would like it to be.
- Early horizon scanning A systematic outlook to detect early signs of potentially important developments through a systematic examination of potential threats and opportunities, with emphasis on new technology and its effects on the issue at hand.
- Matching unmet needs with research Evaluations to macth unmet needs of patients/patient communities with available interventions and resources to search for improvements and further steps in research
- Defining patient-relevant added value and outcomes Insights from patients/patient community in determining what is of meaningful value and relevant outcomes for patients, to ensure research efforts focus on those.
- Protocol synopsis
This includes revision of the protocol design and evaluation of the target population.
- Practical considerations
This includes revision of contractual issues, travel expenses, support for family members, mobility. - Protocol design
This includes revision of the following sections: Relevant endpoints, in-/exclusion criteria, diagnostic procedures, patient-reported outcomes/QoL measures, benefit/risk balance, ethical issues, mobility issues/logistics, data protection, adherence measures - Patient information
This includes revision of content, visual design, readability, language, dissemination - Informed Consent
This includes revision of content, visual design, readability, language, age suitability - Ethics Review
- Trial Steering Committee
This includes the following tasks: Protocol follow-up, Improving access, Adherence - Information to trial participants
This includes tasks on protocol amendments and/or new safety information - Investigator meetings
This includes revision and discussion on trial design, recruitment challenges and opportunities, resulting amendments - Study Reporting
This includes revision of summary of interim results and/or dissemination of results to patient community and professionals - Data analysis and interpretation of result
This includes interpretation of PRO data, ensuring that the analysis takes into account the patients’ lived experiences, including emotional and financial burdens. - Data & Safety Monitoring Committee
This includes revision and discussions on benefit/risk, drop-out issues, amendments
- Regulatory Affairs
- MAA evaluation | Patients evaluate marketing authorisation applications to ensure that patient perspectives are considered in the approval process
- EPAR summaries | Ensure that summaries of the European public assessment reports are clear and understandable to patients
- Package leaflets | Review package leaflets to ensure they are written in plain language and provide necessary information in an easily understandable format
- Updated safety communications | Ensure that new safety information is communicated clearly and effectively to patients
- Lay summary of results | Provide lay summaries of research results as required by regulatory bodies
- Health Technology Assessment
- Assessment of value | Patients involved in the assessment of the value of new health technologies to ensure that patient-relevant outcomes are considered
- Patient-relevant outcomes | Ensure that the outcomes measured in HTA are relevant to patients/patient communities
- Patient priorities | Incorporation of patient priorities into HTA to ensure that the evaluations align with what is considered important for patients.
- Post-study communication
- Contribution to publications | Involving patients in the preparation and review of research publications to ensure that findings are communicated accurately and accessibly to the patient community
- Dissemination of research results to patient community/professionals | Involving patients in the preparation and review of research publications to ensure that findings are communicated accurately and accessibly to the patient community
- Pre-submission
- Orphan Designation
- COMP – Committee for Orphan Medicinal Products
- Scientific Advise / Protocol admissions
- CHMP – Committee for Human Medicinal Products
- SWAP – Scientific Advice Working Party
- CAT – Committee for Advances Therapies
- Paediatric Investigation Plan
- PDCO – Paediatric Committee
- Orphan Designation
- Evaluation
- Marketing Authorization application evaluation
- CHMP – Committee for Human Medicinal Products
- CAT – Committee for Advances Therapies
- PRAC – Pharmacovigilance and Risk Assessment Committee
- Marketing Authorization application evaluation
- Post-authorisation
- Post-marketing authorisation
- CHMP – Committee for Human Medicinal Products
- PRAC – Pharmacovigilance and Risk Assessment Committee
- SAG – Scientific Advisory Group
- Post-marketing authorisation
- Community Advisory Board Groups established by patient advocates to discuss the latest developments, challenges and issues related to medical research in their disease area
- Advisory Committee Share patient’s opinions and perspectives, study issues, and develop recommendations in a focused, small group structure
- Ethics Committee Involvement of patient experts in ethics committees to ensure that research is conducted in a manner that respects patient rights and dignity.
- Guideline committee Develop and implement procedures to ensure that clinical practive guidelines are based on the best available evidence and are produced in ways consistent with internationally accepted best practices.
- Patient advocacy committee Represent, promote, and advocate for the interests of the community with regard to policies, laws, regulations and other developments
- Research project partnership
- Review scientific research/project proposals | Ensure it is relevant and meaningful to patients/patient community.
- Letter of intent/support for research initiatives | Provide a letter of intent or support for research initiatives to confirm patient endorsement and alignment with patient needs and priorities.
- Peer Review for journal articles
- Review articles to ensure the research is relevant and meaningful to patients.
- Fundraising for research
- Evaluate proposals for fundings to ensure projects are aligned with patient needs and priorities in the specific area.
- General lay language content revision
- Revision of general lay language content to ensure that it is clear, accessible, and understandable to non-expert audience.
- Evidence based advocacy
- Surveys | Participate in the desig and distribution of surveys to ensure they are understandable, aim meaningful outcomes for patients, and respect data protection rules.
- Patient preference studies | Participate in the design and conduction of patient preference studies to ensure it accurately collects data to understand what matters most to patients, and that it is presented in a understandable way for patients.
Are there any activities missing?
Do you need expert patient support for any other task?
Step-by-Step guide
How It worksfor Researchers?
Symmetrian simplifies the process of finding and engaging the right patient experts for your research needs.
The power of Patient Involvement
Transforming research, together
Patient Involvement is no longer a “nice-to-have” in today’s research landscape. It’s a necessity. Integrating patient perspectives early and often leads to more relevant research questions, improved study design, increased participant engagement, and ultimately, better health outcomes. Symmetrian makes it easy to tap into this invaluable resource.
Our Process
Innovative Process, Reliable Results
Make An Appointment
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Business Plan
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Testimonials
What Client Say ?
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Our FAQs
Frequently Asked Questions
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Far far away, behind the word mountains, far from the countries Vokalia and Consonantia, there live the blind texts. Separated they live in Bookmarksgrove right at the coast
Far far away, behind the word mountains, far from the countries Vokalia and Consonantia, there live the blind texts. Separated they live in Bookmarksgrove right at the coast
Far far away, behind the word mountains, far from the countries Vokalia and Consonantia, there live the blind texts. Separated they live in Bookmarksgrove right at the coast
Far far away, behind the word mountains, far from the countries Vokalia and Consonantia, there live the blind texts. Separated they live in Bookmarksgrove right at the coast
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Why Choose Us
Your Goals, Our Commitment
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Get Start With Us
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Why Choose Us
Your Goals, Our Commitment
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Industry Recognition
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Competitive Advantage
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Commit To Professionalism
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What is Symmetrian
It is not
A platform to recruit patients for clinical trials or to respond surveys
It is
A platform to find patient experts that can give relevant input into many research initiatives and R&D processes
Meet the team
Meet the team
Our passionate team, alongside a wider patient-led consortium and expert technical partners, works tirelessly to develop and refine this platform. We’re all united by a shared vision: to make patient voices a fundamental and impactful part of every research journey.
